As I pushed my cart in the Frozen Food aisle of Whole Foods, I saw a young boy pull open the door to select his favorite ice cream. Then I witnessed him open and close the same door exactly nine times before he was able to reach in and select a pint of vanilla. After he made his choice, he then again opened and closed the door nine times. He proceeded to twitch a little as he walked back to the cart to deposit his ice cream. Many of the other patrons seemed baffled by the boy’s behavior, and some even looked annoyed. But I immediately recognized what his issue was. His mom was standing nearby, allowing him to go through his routine. I cautiously approached her, said hello, and asked if her son suffered from Tourette’s Syndrome. She said yes, along with tic disorder, obsessive compulsive disorder, etc. The mom was very candid and open about her son’s struggles, but as we spoke I began to feel her asking herself the question, “Why is this bozo so interested in my son’s plight”? Before she could ask her question to me, she must have recognized a twitch or two, noticed the way my shopping cart had been organized, and surmised the reason for my curiosity. Without inquiring about any condition I may have, she introduced me to Noah, her 11 year old son. He was a very bright and sensitive boy, and much more adjusted than I was at his age. He explained to me through various twitches and grunts that his friends and teachers are sensitive to his condition, and he is even able to laugh at it himself. He had a wonderful happiness to him. Noah also told me that he was allowed extra time for tests at school. I thought to myself, Wow, have we come a long way since I was a kid. But my frustration turned to appreciation as it felt like our society had turned the corner regarding Tourette’s and other compulsive disorders.
As we parted ways, Noah waved good-bye and his mom thanked me for my thoughts. It turned out I was the first person she ever had spoken to over 40 who suffered with some of the same problems as her son had. She mostly had interacted with young kids and their families who shared stories about what each day with Tourette’s, Tic Disorder or OCD was like. I call them “A Day in the Life Stories”. As I tell my wife, it is difficult to know what a day with these disorders is like unless you experience it. The constant cleaning, organizing, twitching, grunting, worrying, and anxiety can just wear you out. Each individual’s condition can manifest in different ways. My pal Noah must do things 9 times, including brush his teeth, click his fork before he picks up a piece of food, and as you heard, open and close doors. Others may look back at their car multiple times to ensure that their lights are off. Some may be at a restaurant and obsess over whether or not they turned the stove or oven off, even if they hadn’t used either for days. Whatever the symptoms, it is not fun. I would share some of my issues but there are not enough trees in the Pacific Northwest to cut down to make the paper I would need to make a list.
The truth, we who suffer with these conditions must face is there may never be a cure. But that is fine. We must learn to cope. It has made me a stronger and, ironically, more appreciative person. Unfortunately, I have met young people who will never see their 10th birthday, and they are strong and courageous fighters. They press on, making the best out of each day. What a terrific lesson. To squeeze out each wonderful moment from each day and from each experience, and to appreciate the opportunity to do so.
As I told my new buddy Noah, the big guy upstairs must love those who have Tourettes and Tic disorders because he made us all so smart and good looking. He agreed. Then we shook hands on it, nine times.